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Article 9
Hi Everyone! I’m Caitlin, I like writing, drawing, painting, music, the sunshine, I love helping people and I have epilepsy. I’m 15 and I’ve had seizures since I was 2 (so that’s 13 years if you feel...
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Supporting Each Other
Around 50 million people in the world have epilepsy. Most people who I’ve met with epilepsy have a very positive outlook on life. I’ve talked to a whole range of people – from those whose seizures are...
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Back From the Hospital
Some of you may be wondering what happened since I got out of the hospital, or what the results were and so on. Well, because I didn’t have any seizure activity in the hospital, they didn’t have much...
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New Epilepsy Bracelet
New bracelet from Tracy Tayan Designs (www.tracytayandesigns.com). It’s so pretty! I love it! :)
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You Are Not Alone
I’ve been really lucky because I’ve never felt totally alone with my epilepsy. Nearly every school I’ve been at there has been another kid with epilepsy in the same grade as me. It makes me kind of sad...
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Weaning
If you didn’t know already I have been slowly weaning off my pills since, like, mid-summer. I’ve gone down to only 25 mg a day of Topamax, which practically doesn’t even work for seizure control. So...
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We Day 2013
Yesterday I arrived home from a fantastic trip to Vancouver with some kids from my school to go to We Day! If you don’t know what We Day is, I encourage you to visit any of these websites:...
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Trying to Stay Off Meds
So it’s been almost a month since I went off Topirimate and I’m feeling great! I’ve never felt more myself! And although I’m super happy that I’m off the meds, there have been a few drawbacks. I’ve...
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Defined by a Disorder
One of my pet peeves is how people use the term “epileptic.” It irks me when it’s used to describe people with epilepsy. I am not an epileptic. I’m not defined by the disorder I have. I’m many things:...
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Why Sandpaper Smiles?
So why did I choose the name Sandpaper Smiles? Well, before I get seizures or sometimes when I’m feeling, dizzy, out of it or just plain nasty. I’ll get what’s called an aura. It basically is a visual...
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